Wednesday, April 16, 2008

Dakota Seeker M


I guess since I am the only one posting at this time. I will post something that is near and dear to my heart which is not related to my physical health.

This morning I had to say goodbye to a very good friend of nearly 11 years. My buddy Dakota Seeker. I could not have asked for a better friend, dog. He was so smart, quick with love and attention, slow to anger, always excited to see you, made fast friends with any a human or animal, protector.
A few of my fond memories are:

-Training with him on bird wing. I tracked the wing all over the back yard without him seeing me, then hid the wing in the gutter 7' up on the garage. He came out followed the exact path of the wing on the ground and went & stood under the gutter looking up.
-Him running through water at his shoulder height, he looked like a deer bounding. Even though he wasn't a water dog he loved to swim and play in it.
-Dog Run back home. In fear watching as he lept across a 7' wide creek. It was an amazing thing to see.
-In the last few months he figured out where the best place was to get sick - on the tile floor. Each and every time he would hide from me because he thought he might be in trouble, and then he would wait for me to tell him that he was ok.

Sooo many memories, too many to post.

These past few months he had been battling intestinal cancer. Doctors in November (same month I got diagnosed with ECD)gave him less then a month to live. But not him. He faught. He still had too much love to give out freely and he continued to pour it out for 5 more months. In the end I, the person he always looked to for comfort had to say goodbye. He went peacefully and quietly in my hands as I told him like I always have, "your ok, your ok, your ok".....

In peace, eat, sleep, play, make new friends. Can't wait to see you again my friend. "Mom" says to share a few tennis balls with some of the other dogs!!

Your buddy,

Doug M

Saturday, April 5, 2008

A 2nd

So the thought is being tossed around about getting a 2nd on the disease diagnosis and the treatment. Not that Dr. Luthra is not capable but that this is very important and we need to know that we are getting the best possible. This disease is so rare, so the more information, the better! After making many calls to doctors who have treated ECD I have pretty much narrowed the list down to either MD Anderson in Houston or Dr. Arceci at Johns Hopkins both as it sounds have treated around 20 patients (according to their offices) with ECD, which is far more then anyone else that I have found anyway, and in speaking to other doctors these two names were continually brought up.

We have not committed to either as of yet. I still need to check on insurance etc. If anyone has any other suggestions on doctors please feel free to post a comment. What I have been basically looking for is how many patients they have treated, their name, phone number, location, misc past treatment info.

Warm days ahead!