GO!

I've had in the back of my mind, since being diagnosed with Erdheim Chester Disease and coming to the realization how rare it is, an idea of how to explore my "feeeelings", get more information out to the public, allow friends and family to hear word for word, and possibly allow others affected by this condition to vent.

I think I may have found it with a blog. Being this is all new not sure how this is going to work or if it will at all. There's always the "delete blog" button if things need to go a different direction.

So from time to time I will post "thoughts," "feeeelings," "experiences."